I hope everyone is enjoying reading our story of how our precious Justice came into our lives but I thought you would also want to know what is happening currently with her. It would be really hard to explain everything right now but here are a few things that have happened in the last few months.
In Sept. she had brain surgery to correct a Chiari I (almost a II) malformation. At that time the doctor suspected she had a tethered spinal cord. In Nov. she was sedated for a MRI which confirmed the tethered cord. Then in Dec. she had spinal cord surgery to untether the spinal cord and at the same time they moved her G-Button (feeding tube) to a new position because it was leaking really bad.
They were planning to put spinal rods in her back to correct her scoliosis as soon as she recovered from these surgeries but has since put that surgery on hold. It's just to much for her to deal with right now. She also needs to get head gear to correct her teeth but that was put on hold for awhile due to needing good MRI's. Head gear is metal and will effect the outcome of the test.
We currently just got Justice a new (new) backbrace for her scoliosis. She got one in Jan. but it didn't fit right so she just received her second new backbrace since her last surgeries and is slowly getting used to being back in one. It's a process and takes a lot of patience and Tylonal but we're making it.
We go next week to re-look at starting head gear. Not sure if this is the best thing considering all she's been through but her teeth say it's time.
The last major thing we're considering in the near future, that I'm aware of anyhow, is a new growth hormone therapy. She currently takes a shot everynight but we're looking at adding a new type that would mean 3 shots a day. I guess we'll just have to see.
Other than that, we still have our check-ups. Neuo-surgery is at the end of the month so I'll up-date if he has anything new to say but that's the really about it. She did hit the back of her head last week where she had brain surgery in Sept. and scared me half to death. The worst part was she didn't tell me what actually happened until the next day while we were in a doctor's office, the little stinker. She was fine but I'm sure her Neurosurgeon will be interested in the story.
Thanks for stopping by and reading my blog. Hope everything is well in all your lives.
Christy & Justice
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