Hello to all,
I am so sorry it has been so long since my last post. A lot has been happening with Justice this last month that has been keeping us very busy with tons of doctors appointment.
First, she since her brain and spinal cord surgeries we have had some set backs. She had developed new symptoms and difficulties that we are trying to deal with, accept and overcome but as time has gone on instead of getting better, she has in some ways become worse. It seems each month we have a new doctor and a new problem to address.
Second, in October, she is going to have spinal rods put in her spine to correct her scoliosis. Over the last couple weeks it seems I have been on the phone continuously with her whole team of doctors preparing for this surgery. I will try and use this blog to keep everyone informed as to how she's doing through this time but as you might imagine, my first priority will be to her but I will do the best I can for you also. I know how much all of you have come to care for her and will be concerned as to how she's doing.
Third, Justice has been diagnosed with a condition called Lymphedema. It is very mild right now but is effecting her feet and her ability to walk for long or even moderately long periods of time. There is no treatment or cure for this condition so we could use a lot of prayers right now.
As parents, what do you say or do for your child when they are in tons of pain and there is nothing you can do for them and it's never going to go away? We are so blessed that Justice is who she is. I wish all of you could meet her. With all that she goes through, she still manages to have such a loving, joyful, normal spirit about her. As all this weighs me down, she just wants to go swimming. As others look at her with discrimination, she looks back at them with a smile because she is happy to meet them. I have so much to learn from her.
Thank you all for your support,
Christy
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