For everything there is a reason. That’s what I keep being told. In my heart I know that’s true or at least I have to believe for it’s what keeps me hanging on through the hard times but I don’t know if those are words I , myself, will be able to pass on so lightly anymore.
After going to around 30 medical appointments, ordering a wheelchair, unending bartering with specialty clinic schedulers, crabby receptionists, holding Justice down for all sorts of procedures and tests, numerous trips up and down the interstate, standing in line to copy my insurance and fill out redundant paperwork…..the spinal rod surgery has been called off for now!
Our doctor, although when I spoke to him on Thursday everything was fine and ready to go, as of Friday, he took indefinite sick leave so now we must start the whole process over with a new doctor. The new doctor is squeezing us in where he can but will need to decide for himself what treatment he would like to do.
Here’s my frustration, I have a child with feelings and emotions. This is the third time this surgery has been postponed and for a surgery this big, it takes some mental & physical preparing. She has been checked from top to bottom by grown men (doctors) for this and will now have to have it happen again. She & our whole family have lived for weeks with the fear of this surgery and reality of the possible negative outcomes it may have. I realize this is not something people want to talk about but this is how it is when you live a life constantly having these kinds of surgeries. We know too well the risks involved.
On top of all this, there is the re-planning that will have to be done if and when this new doctor decides to do the surgery. Setting up the nurses, getting her back into the therapy sessions that were cancelled, more trips down the interstate, and more money spent on hospital bills, gas and food. There are many people who have rearranged their plans for us to be able to be gone during the planned surgery week. All those people have been affected by this cancellation. To them I send out my deepest apologies and heartfelt thanks for everything they have done for us.
I’m sure in the end it will all work out for the best. My thoughts and prays are with our doctor right now. He is a wonderful man and I’m sure he had a very good reason for needing this time off. His staff is working very hard to figure out how to handle this situation. They are doing it with great kindness and patience. I’m sure this has to be hard with all us parents being so frustrated and disappointed.
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